Why An Indonesian Rehab Center Doesn't Insist On Abstinence

17 hours ago
Originally published on May 16, 2019 6:58 pm

Sam Nugraha runs a rehab center in Indonesia, and to understand his approach to addiction, he says it's important to know something about his country.

Sometimes, Nugraha says, Indonesians smile when they aren't really smiling. They're smiling, but underneath the smile, they aren't.

"Because the culture tells us we have to be polite," he says, "when we don't know the answer, then we have to smile. When we feel threatened, we have to smile. In our culture we are not supposed to expose our shortcomings to other people."

There's an Indonesian word that captures this — malu. There are a lot of ways to translate malu, but one way is to define malu as a mask. Everyone knows what's underneath, but you still keep the mask on, hiding the stuff that doesn't look good.

In the 1990s, a lot of heroin came into Indonesia from other parts of Southeast Asia. Nugraha became addicted in college. He spent time in mental hospitals and in jail. Finally he landed at a rehab program based on the famous addiction treatment program Alcoholics Anonymous, or AA. The program also offered meetings of NA, Narcotics Anonymous.

AA wasn't common in Indonesia, and it was all new to Nugraha. Especially the AA approach of sharing in meetings, where group members tell stories of addiction and their path to recovery and abstinence — AA is an abstinence-based program. Nugraha still remembers his first NA meeting.

"They always introduce themselves by telling, 'Hi, my name is X, and I'm an addict.' And the group immediately respond, 'Hi X!' " Nugraha laughs. He remembers thinking, "What's going on?"

Malu culture had taught Nugraha to conceal his feelings. Now he was talking to a group about deeply personal things, like his relationship with his father. "I was scared to be honest. It's twisting everything you believe."

"It's very American — people saying out loud their feelings to strangers and all that."

Even though this approach was foreign, Nugraha ultimately embraced it — in three years he made it through the 12 steps. Then he did a six-month training program and became a peer counselor. Nugraha embraced the talking-about-your-feelings approach and AA's emphasis on abstinence.

John Kelly, a professor of psychiatry and addiction medicine at Harvard Medical School, has done a lot of research on Alcoholics Anonymous. "As an entity broadly speaking, [AA]'s most well suited for abstinence," Kelly says. The 12 steps, he says, are designed for people who want to quit — who want to completely stop drinking or using drugs.

And in AA, sobriety often comes with congratulations. You can receive plastic tokens as milestones for your weeks, months or years of sobriety — in some meetings you can even receive birthday cake celebrations for your "sobriety birthday" to mark another year of abstinence.

As a counselor, Nugraha subscribed to this idea of abstinence only until something happened with a client he really liked. The client ultimately stayed sober and graduated from the program. Less than six months later, Nugraha learned that his former client had overdosed and died.

"And that actually got me thinking, 'What was wrong?' I mean, what can prevent him from dying?"

Nugraha started to wonder, what if AA and its focus on sobriety weren't right for everyone?

In 2010 he decided to start his own addiction treatment program called Rumah Singgah PEKA — Indonesian for Stop-by House. The official motto is "When the whole world rejects you, stop by at Rumah Singgah."

The center is in Bogor, a city about an hour south of the capital, Jakarta, with views of the nearby mountains. It's located in a big peach-colored house with a tile walkway to the door that's lined with several small dogs. Nugraha says the dogs are "addicts too" — apparently they're addicted to humans.

The rehab center has a staff of around 20, including three addiction and mental health specialists. There's also a doctor on call who specializes in working with people who use drugs. Rumah Singgah is currently funded entirely by the Indonesian government.

The place has many of the things you'll find at a lot of rehab centers, like cognitive behavioral therapy, a type of talk therapy with a counselor, and job-training programs.

But there's something that's a departure from the abstinence-based AA model. Rumah Singgah clients are not required to be completely sober.

The patients can't use on the premises, but Nugraha will not kick out patients who do drugs or drink alcohol while still in the program, as long as they tell their counselors. It's the first rehab program of its kind in Indonesia, but it's part of a movement around the world that's sometimes called "harm reduction."

"Harm reduction is an agreement that you start with the person where they're at," says Daniel Ciccarone. He's a professor of family and community medicine at the University of California San Francisco and the lead investigator on the Heroin in Transition project funded by the National Institutes of Health. He has been working in harm reduction for two decades. "The underlying philosophy is that we don't immediately think, a priori, you're going to change your person," he says. In other words, you're starting with the person as they are.

"It came out of ... a stance that we're not taking care of people with HIV, we're not taking care of people who use drugs," Ciccarone says. "We're not taking care of a number of people in society with highly stigmatized illnesses."

Harm reduction in addiction treatment grew during the AIDS crisis in the 1980s as clinicians promoted clean syringe exchanges, acknowledging that patients might keep using drugs but still trying to reduce the spread of HIV and hepatitis and decrease overdoses.

Today harm reduction can also refer to prenatal clinics designed for pregnant women addicted to drugs — clinics keep that in mind in treatment. Or even, in other places, supplying the patient with small amounts of the drugs the patient is addicted to.

Ciccarone sees harm reduction as a reaction to a doctor-knows-best approach to medicine. He says that in the past, patients would listen to doctors "as if they were your pastor. You listened to them and you obeyed them, right?"

He sees harm reduction as a more collaborative approach to addiction, with the patient and the doctor engaging in "a negotiated contract to make [the patient] better."

Nugraha's Rumah Singgah treatment program is based on partnerships with patients. "We do not decide what's best for our clients," Nugraha says. "The clients have to decide what's best for them."

And that might include drinking alcohol once a week. Nugraha does not measure success based on whether people get sober but on their quality of life. Are they holding down a job? Are they healthy? How are their relationships going? The overriding question is how well the patients are achieving the goals they set for themselves with their counselors.

Harm reduction programs often provoke strong reactions. When Nugraha's clinic opened, his neighbors attacked him for his approach — especially his methadone program. Methadone is a medication that helps with the cravings associated with heroin addiction, much like a nicotine patch would for those trying to quit smoking. With patients coming into the neighborhood for methadone medicines, the neighbors told Nugraha, "[You're] a new drug dealer in town. You're just helping people to keep using drugs."

The way Nugraha sees it is that addiction is a disease like diabetes or any other. You can't expect everyone to get sober. And Anna Lembke, medical director of addiction medicine at Stanford University's School of Medicine, says that the medical community across the U.S. is broadening its understanding of the role of sobriety in addiction treatment.

"There's a rethinking in the field of addiction medicine whether abstinence is the only definition of recovery," she says. "As we're encountering more and more behavioral addictions like addictions to food and sex — we can't expect people to abstain from food and sex — therefore we have to think about what healthy consumption looks like."

Nugraha does recommend abstinence-based AA programs to clients who he thinks will benefit from the support group element. And Kelly notes, AA and NA accept that relapse is a part of a process, and those who relapse and come back to the program are accepted and encouraged. There's even a line in the NA booklet that reads, "The newcomer is the most important person at any meeting."

But Nugraha thinks that in Indonesia, the AA approach can sometimes stir up feelings of malu and fears of being shamed — especially when relapse is involved. AA is a volunteer organization made up of thousands of groups around the world. Nugraha notes that in Indonesia some groups are less accepting of members who relapse and those who lie and are found out.

"Many people feel ashamed when they slip, [when] they use again," he says. "And they don't want to admit, because it gives that feeling of being a failure."

Nugraha is trying to create an environment in his center where people don't feel ashamed for having an addiction or for relapsing. And he doesn't want to shame them for lying.

"Lying is part of the business," Nugraha says. "Humans are fragile."

Nugraha's approach is growing in Indonesia. Now he's consulting with the Indonesian government and doing trainings across the Asia-Pacific region. People around the world need help reaching the hardest cases, and as Nugraha has found, sometimes the first step is getting past shame.

Julia Simon is a regular contributor to NPR's Planet Money. You can also hear her on the NPR business desk and the NPR podcasts Code Switch and Rough Translation.

Copyright 2019 NPR. To see more, visit https://www.npr.org.

NOEL KING, HOST:

Reporter Julia Simon is in our studios in New York.

Hi, Julia.

JULIA SIMON: Hey, Noel.

KING: So you are bringing us a story today that took you halfway across the world, but it actually started very close to home with your mom in California.

SIMON: Right. So my mom's an alcoholic. And growing up, my mom would go to meetings of Alcoholics Anonymous - AA - in my hometown of Los Angeles. And keeping with AA's tradition, we're going to keep my mom anonymous. Anyway, her AA groups would give these sobriety birthday cakes.

(SOUNDBITE OF ARCHIVED BROADCAST)

UNIDENTIFIED PERSON: And the rest of AA makes fun of Southern California for it.

SIMON: Right. So these cakes are mostly a Southern California thing. But they get to a bigger idea at the heart of AA, which is this emphasis on not drinking at all. In some AA groups, that can make it really hard to admit that you've relapsed.

KING: Yeah, because you go back to square one. And now you've got a cake with no candles on it, right?

SIMON: Yeah. But my mom - she was very into it. And then one night a few years ago, my mom was thrashing around in her sleep. And my dad took her to the ER, and the doctors found alcohol in her blood. It turned out that for seven years, my mom had been drinking and lying about it.

KING: That must have been a really awful feeling to find this out.

SIMON: Yeah. I was upset about the lying. And I sat down with my mom to talk about it.

(SOUNDBITE OF ARCHIVED BROADCAST)

UNIDENTIFIED PERSON: I mean, it was very disingenuous.

SIMON: But why didn't you tell anyone? We could have helped you.

UNIDENTIFIED PERSON: Because it was more important to me to keep up the illusion that I was sober. I was committed to looking like I was OK.

SIMON: My mom's the kind of person who, as she says, wants things to look good. She lied to make everything seem like it was OK. And I wondered, how do you help people like that with their addiction? I used to live in Indonesia. And there's actually a word there for this need to make everything look good. It's called malu. There are a lot of ways to translate malu. But one way is to think of malu as a mask.

(SOUNDBITE OF ARCHIVED BROADCAST)

SAM NUGRAHA: Yeah, because the culture tells us we have to be polite. When we don't know the answer, then we have to smile. When we feel threatened, we have to smile.

SIMON: This is Sam Nugraha. He's from Indonesia.

(SOUNDBITE OF ARCHIVED BROADCAST)

NUGRAHA: In our culture, we are not supposed to expose our shortcomings to other people. We are not supposed to tell our feelings.

SIMON: In the '90s, there was a lot of heroin coming into Indonesia from other parts of Southeast Asia. And Nugraha became addicted in college. He landed at a rehab program with the AA approach.

(SOUNDBITE OF ARCHIVED BROADCAST)

NUGRAHA: They always introduced themself by telling, hi, my name is X. And I'm an addict. And the group immediately responded, hi, X. Like, what's going on? (Laughter).

SIMON: Was this just, like, kind of mind-boggling to just...

NUGRAHA: Absolutely. I was scared, to be honest, because it's twisting everything that you believe.

SIMON: Nugraha called this American culture.

(SOUNDBITE OF ARCHIVED BROADCAST)

NUGRAHA: Because it's very American when people saying out loud their feelings to strangers and all that.

SIMON: But Nugraha made it through the 12 steps. He graduated from client to peer counselor, and he had this client who he really liked. This guy graduated from the program, and then he overdosed. And he died.

(SOUNDBITE OF ARCHIVED BROADCAST)

NUGRAHA: And that's actually - give me - get me thinking, what was wrong? I mean, what can prevent him from dying?

SIMON: Nugraha wondered, what if preventing people from dying was more important than keeping them sober? Nugraha decided to start his own rehab in Bogor, a city about an hour south of the capital Jakarta.

(SOUNDBITE OF ARCHIVED BROADCAST)

SIMON: Look at - who are these dogs?

NUGRAHA: These are also addicts.

(LAUGHTER)

SIMON: What are they addicted to?

NUGRAHA: Human, I suppose.

SIMON: Humans (laughter).

NUGRAHA: Yeah.

SIMON: Nugraha's rehab is called Rumah Singgah PEKA. There's therapy, job training. And clients here are not required to be completely sober.

(SOUNDBITE OF ARCHIVED BROADCAST)

NUGRAHA: We do not decide what's best for our clients. The client have to decide what's best for them.

SIMON: Do some of them keep doing heroin just, like, once a week or something?

NUGRAHA: Yeah, some of them are still using.

SIMON: The patients can't use on the premises, but Nugraha does allow them to do drugs and drink alcohol while still in the program. It's the first rehab like this in Indonesia. But it's part of a movement around the world that's sometimes called harm reduction. That can include a lot of things, like prenatal clinics for people addicted to drugs and exchanges with clean syringes. Nugraha was attacked for his approach, which includes a methadone program. But Nugraha says addiction's a disease.

(SOUNDBITE OF ARCHIVED BROADCAST)

NUGRAHA: You know, many people feel ashamed when they slip and they use again. And then they don't want to admit because it gives that feelings of, I'm being a failure. It should be like, I still need more help.

SIMON: Nugraha measures success on his patients' quality of life - how healthy they are, how their relationships are going. And this harm reduction approach is really catching on in the U.S. too.

KING: OK. So, Julia, you go across the world to Indonesia. You get in really deep on this cultural concept of malu. And then you come back to the United States, and you talk to your mom again. And you tell her about it.

SIMON: Yeah. And in the same way that the Indonesians I met are kind of adapting malu and AA, my mom is also adapting AA in her life. She still goes to AA meetings. She feels like she really gets a lot from that support. But she's also realized that there are some things about AA that no longer really work for her. Like, there's this prayer where she used to say things about herself that she didn't like.

(SOUNDBITE OF ARCHIVED BROADCAST)

UNIDENTIFIED PERSON: It feels - especially when we talk about character defects, it feels like that's all I am. You know, it was helpful till it wasn't helpful anymore.

SIMON: Yeah.

And, you know, she tells me that if she relapses, hopefully, she'll tell us. But for now, she's celebrating her sobriety by herself with no birthday cakes.

KING: Julia Simon, thank you so much.

SIMON: Thank you, Noel.

KING: That was reporter Julia Simon. And this story comes from our podcast Rough Translation. They're out with a new season now on rebels around the world. Transcript provided by NPR, Copyright NPR.